My youngest brother Reuben, who has Down’s Syndrome, suffered a breakdown 4 years ago. It was a form of regression that locked him into himself. After two years of moving between my parents and partner´s homes, as we were trying to get him better, he moved into a care home in Dorset, UK. Then the … Continued
Written by Louise Walters, adult sibling to brother who has autism We are going to the farm today and we are going to have a picnic. You watch me write the words on your white board. You jump up and start pacing the minute I put down the pen. You are ready to leave now. … Continued
Growing up as the middle sibling to two brothers with profound and multiple learning disabilities has made me the person I am today. Being tuned in to non-verbal brothers taught me to live mindfully well before anyone knew what that might mean. I am aware of the environment around me, changes in sound and light, … Continued
Above: Joan and her sister, Irene Sibling Joan Corrigan shares her experiences in this powerful two-part blog ‘Accountability’. We know that many siblings will relate to Joan, when she says: “The powerlessness I feel is the worst, but not for me, for my sister. I feel this strong compulsion to protect her, given my skills … Continued
Around eighteen months ago, our family were informed that my brother D’s appointee, the manager of the project where he lives within a supported living community, was retiring. We were asked whether we as a family would like to take over the appointeeship, or whether we wanted his local council to step in. We had … Continued
Conversations with Carers explores the lived experience of paid and unpaid carers through a series of podcasts and articles, which have also inspired 5 short dance films performed by disabled and non-disabled artists, some of who are also carers. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported … Continued
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. In this video, you can watch dancers Max Cookward … Continued
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. The work is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. Episode 3: The informal Carer Photo credit: Conversations with Carers, produced … Continued
A well-meaning HR Manager in a previous job once told me that she understood the difficulties I was having juggling issues with my brother’s care and a full-time job because she was a working parent and she too had the juggle childcare and work. I responded (perhaps slightly unfairly on reflection) by pointing out that … Continued
I have an incredibly unique family as both my brother and sister have a degenerative disease of the nervous system. My Mum is in the last stages of Multiple Sclerosis (MS). So from the get-go I was in a world of disability, experiencing the good, the bad and the down right ugly!!! The advice I … Continued