Being a sibling can be complicated and challenging. Many siblings grow up not knowing there are other people out there with similar experiences, but it can really help to know that you’re not alone. In this section, adult siblings share their stories of life with their disabled brother or sister.
I listened to the TED Talk – Alicia Maples, Recognising Glass Children. As a ‘glass child’ I found this difficult to listen to but very interesting. So much of what Alicia said made sense to me and it made me very reflective of my own childhood. My childhood was wonderful in so many ways, but … Continued
I’ve recently made some new friends. I want to explain about my brother and how he is severely Autistic and non-verbal. People often hear the Autistic part and don’t really pay attention to the non-verbal part. This can be difficult as it means people make an assumption about what my brother is like. They might assume … Continued
Siblings are typically the most consistent advocate for their disabled brother or sister throughout their lives. Many siblings do advocacy without even realising they’re doing it – whether that is young siblings advocating for their disabled brother/sister to be included in activities as children, or adult siblings pushing service providers to do better. Despite falling … Continued
My brother Lionel, died in January 2020 of acute myeloid leukaemia. Lionel was 70 when he died; for 68 out of his 70 years he had been supported tirelessly by my mother, who died in 2017 aged 94. My sister Liz and I only had to take full responsibility for Lionel’s wellbeing for the brief … Continued
Sibling Truths Important: This is a personal account that may/may not be reflective of other people’s experiences. There are many times when having a sibling with a disability is hard; life-changingly, cripplingly hard. I feel we don’t speak about this enough. Social media is full of posts of parents celebrating their children’s disabilities, sharing moments … Continued
Hellooo everyone! Thank you for taking the time to read this. My name is Emily, and I currently live in Brighton, around 125 miles from Suffolk, where my mum, dad, and sister, Kate, still live. I usually see my parents about once every three months and my sister about twice a year. Honestly, one of … Continued
Hear more about the experiences of siblings in the video below, which was created in 2021 to celebrate Sibs 20th anniversary
From the ages of 1-6 years old, me & my twin brother were very close. Our sibling relationship began to decline rapidly when he started experiencing autistic meltdowns and this impacted our relationship heavily. At the time, I was still young and unable to understand what autism was, with adults around me too weary to … Continued
Whenever I’ve been asked to describe my life being the younger sibling to someone with a disability, I always use the same analogy: It’s like walking into a film that’s halfway through. The reason I use this analogy is because I have only been around following my sister’s illness. My images of life before I … Continued
Olly and I were born twenty years ago. We are identical in every way until he was diagnosed with autism, learning difficulties, and ADHD. This has led to us having different life plans from the start: I am destined to care for Olly all my life, while Olly is destined to be cared for. Olly … Continued
Would you like to help other siblings by sharing your own story? Please get in touch.