Sibling stories

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Jack – “What started as frantic messages on my phone during a train ride to say goodbye became an ongoing conversation between the living and the lost”

When my younger brother and closest friend, Sam, passed away just shy of his twenty-seventh birthday from Duchenne Muscular Dystrophy, a muscle-wasting disorder that effects hundreds of thousands of boys worldwide, I began writing to him from the passenger seat of grief. What started as frantic messages on my phone during a train ride to … Continued

Alan – “A journey to make sense of feelings”

“The Search for Still Waters is about one sibling’s journey to make sense of his feelings around the life and death of his sister, who had severe cerebral palsy. Aoife couldn’t walk or talk and her condition was little understood in 1980’s rural Ireland. When she passed away in 2011, her brother Alan was left … Continued

Louisa – “Advice from Sibs helped me get better support for my disabled sister”

I live in Northern Ireland with my husband and we look after my mother-in-law who is in her 90s. My own parents are in their late 70s/early 80s and live in England. They are on a basic pension, and Mum has recently started having memory problems. My sister Emma has Down Syndrome and lives next … Continued

National Siblings Day 2023: Sibling strengths

Join us in celebrating National Siblings Day on 10th April – a global awareness day recognising brothers and sisters! This year our theme is #SiblingStrengths and we spoke to three brilliant siblings who told us more about theirs. What are your #SiblingStrengths? What strengths do you admire in other siblings? Be part of the conversation … Continued

National Siblings Day 2021: Jane

My sister, Mary Kaye, was born with cerebral palsy (CP). She has had a number of other health complications throughout her life which can go a long with CP. I am 70 years old and Mary is 5 years younger than I. Two brothers fill out our family of 4 children. In our family there … Continued

National Siblings Day 2021: Shamini

The day my sister was born, I had no idea this tiny baby would become the most important person in the world to me. Nearly four decades later, we are soul mates. As children, we could be silly together but we were too different to enjoy the same things. That all changed when I took … Continued

Coronavirus: Sarah – “Covid is a very real threat”

Living through the pandemic coronacoaster has been even more challenging for those of us who have been shielding to protect clinically vulnerable siblings. My brother Dan has Profound and Multiple Learning Disabilities due to a rare genetic condition called ATRX. Our younger brother Sam who had the same condition passed away suddenly from sepsis … Continued

Coronavirus: Sarah-Jane – “It was stressful supporting my sister through a major operation”

This pic was taken in autumn 2020 when my sister Carol had just had a hip replacement at Hinchingbrooke hospital in Cambridgeshire. It’s not the most glamorous pic but then, it’s not always glamorous being a sibling is it?! Carol has Apert Syndrome which for her means she has some physical and some mild learning … Continued

Coronavirus, 2 years on: Sally – “I am now classed as disabled and have my own blue badge. I feel really guilty to have given my parents another child with a disability”

During covid my whole life changed. I work for the NHS on a critical care unit and am a single parent to a little boy. My dad and mum usually help out with adhoc care. My brother Mark has learning disabilities, and in December 2019 he had to move in with my dad as an … Continued

Coronavirus, 2 years on: Fiona – “I feel bewildered and disorientated”

Where am I? Almost 2 years on – that is a good question and it feels like it is very difficult to answer. I really want to write this update and tell a story of everything being great – that I am back to doing the things I love. The reality is that I feel … Continued

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