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Manni – “Becoming my brother”

My youngest brother Reuben, who has Down’s Syndrome, suffered a breakdown 4 years ago. It was a form of regression that locked him into himself. After two years of moving between my parents and partner´s homes, as we were trying to get him better, he moved into a care home in Dorset, UK. Then the … Continued

Louise – “A day out without words”

Written by Louise Walters, adult sibling to brother who has autism We are going to the farm today and we are going to have a picnic. You watch me write the words on your white board. You jump up and start pacing the minute I put down the pen. You are ready to leave now. … Continued

Amy – “I was a young carer for my disabled sister”

I was 6 years old and my sister, Sophie, was nearly 5 years old, when Kathryn was born. Kathryn was a really easy baby, but when it came to her two year check – things weren’t quite right. Physically she was fine, but she wasn’t meeting milestones mentally and didn’t have any language. That has … Continued

Jack – “What started as frantic messages on my phone during a train ride to say goodbye became an ongoing conversation between the living and the lost”

When my younger brother and closest friend, Sam, passed away just shy of his twenty-seventh birthday from Duchenne Muscular Dystrophy, a muscle-wasting disorder that effects hundreds of thousands of boys worldwide, I began writing to him from the passenger seat of grief. What started as frantic messages on my phone during a train ride to … Continued