Hi everyone, I’m Cassie. I don’t remember a time before my only sibling was diagnosed with what would now be described as level 3 autism and a severe learning disability. Although I have many wonderful memories of growing up with my sister, there were also aspects of our home life that were intensely challenging and … Continued
I listened to the TED Talk – Alicia Maples, Recognising Glass Children. As a ‘glass child’ I found this difficult to listen to but very interesting. So much of what Alicia said made sense to me and it made me very reflective of my own childhood. My childhood was wonderful in so many ways, but … Continued
The thing about being a sibling to someone with a lifelong disability is that it is very difficult to know how you feel about it. The depth of emotions are never linear and only as an adult have I realised the significance of what this has meant, how it has shaped me, and how it … Continued
Sibling Truths Important: This is a personal account that may/may not be reflective of other people’s experiences. There are many times when having a sibling with a disability is hard; life-changingly, cripplingly hard. I feel we don’t speak about this enough. Social media is full of posts of parents celebrating their children’s disabilities, sharing moments … Continued
My brother Richard is two years younger than me, and has severe physical and learning disabilities. He presents as if he has Cri du chat syndrome, but he is much more aggressive and hyperactive with significant behavioural difficulties. He can’t talk, he needs 24 hour care and he has a lot of health problems associated … Continued
Hear more about the experiences of siblings in the video below, which was created in 2021 to celebrate Sibs 20th anniversary
Olly and I were born twenty years ago. We are identical in every way until he was diagnosed with autism, learning difficulties, and ADHD. This has led to us having different life plans from the start: I am destined to care for Olly all my life, while Olly is destined to be cared for. Olly … Continued
Ewen is my big brother and he has consumed my life from the moment I entered this complex world. I never recall questioning why Ewen didn’t talk, nor why we couldn’t attend the family meet-up or neighbour’s birthday party. My pride for my brother has always been in great abundance, not leaving any space for … Continued
“Tired of Spinning Plates” is a project to understand and improve the mental health experiences of carers of adults with learning disabilities. Sibs is a partner of this project. Four sibling carers made short films about their experiences, which you can watch below. Click here to find out more about the Tired of Spinning Plates Project. … Continued
I am the middle child. Three words to sum up my life as a sibling would be responsibility, patience and loneliness. My younger brother, Richard, has Downs’ Syndrome and now early onset dementia and my older brother, David, was diagnosed with schizophrenia in his late teens. I was the reliable one; the responsible one; the … Continued