I struggle to think about the last 6 months of life as a sibling in Covid times, such a kaleidoscope of thoughts, feelings and experiences. Some days I feel like time is flying by, other days are long and difficult and loneliness really hits hard. The loneliness of the last 6 months has been really … Continued
Being a sibling can be complicated and challenging. Many siblings grow up not knowing there are other people out there with similar experiences, but it can really help to know that you’re not alone. In this section, adult siblings share their stories of life with their disabled brother or sister.
My brother is in his 50s and lives semi-independently with the help of myself and carers. Before coronavirus was an issue, he spent his week doing activities at a local centre and enjoyed drumming and ballroom dancing lessons. My brother has anxiety and traits of autism, so these activities were great for helping him to … Continued
We are Esther and Judith. We’re sisters to our brother, Jonathan, who is autistic and has a learning disability. He has a weekly routine of activities and supported training placements. In March, the café he works at closed, and the rest of his activities, including all social and sporting groups, were cancelled. This left Jonathan … Continued
I am a sibling of a man with learning disabilities. I’m also a single mum and an NHS worker. My brother moved in with my dad as an emergency placement in December due to abuse from his carers in his supported housing. It got to a point where my brother was so scared of the … Continued
The impact of Covid has been huge. Probably not in such an obvious way as other people, but in ways that have had a cumulative effect on my disabled sister, myself and our parents. Our father is on the extremely vulnerable list, both parents are over-70, and my sister needs to shield for her own … Continued
Thinking about the impact of Covid on me and my family… I don’t really know where to start. I am coping and we are coping because we have to. I feel at the minute that there will be a cost to this coping and I am worried about what this means for the future – … Continued
My brother Mike and I were born in the late 1960s. In our early years, we were very close as we were near in age. We grew up with an extended family of grandparents, aunts and uncles. We used to mimic TV programs of the time like Bonanza, we painted each other’s faces, we were … Continued
My twin severely autistic brothers were institutionalised at the age of 7. I was 6 and our younger brother was 5 at the time. This was in 1962. I do not remember our parents explaining to us what was happening, nor why our family was being broken up. I remember that my twin brothers were … Continued
I’m 61, and my brother, Frazer, has a learning disability and epilepsy. He is 6 years younger than me, so I have always looked out for him. At the moment, his medication seems to be controlling things well, but we review his treatment regularly with his doctors. I feel like I have been on an … Continued
I am the youngest of four children to two loving and amazing parents. Two of my siblings have severe learning disabilities and epilepsy. My sister, Mira, who is 45, and my twin brother, Prasad, who is 38. Their disabilities were caused by medical failures at birth. It has been an emotional roller coaster being part … Continued
Would you like to help other siblings by sharing your own story? Please get in touch.