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Lisa – “My brother, sister and Mum all have disabilities”

I have an incredibly unique family as both my brother and sister have a degenerative disease of the nervous system. My Mum is in the last stages of Multiple Sclerosis (MS). So from the get-go I was in a world of disability, experiencing the good, the bad and the down right ugly!!! The advice I … Continued

Spoken word poetry, ‘Risk Assessment: High’ by Shamini Sriskandarajah

Shamini entered Poetry for Good, a national competition that ran in the Spring of 2021. Her piece ‘Risk Assessment: High’ was highly commended in the spoken word category. Many siblings will relate to this powerful and articulate poem, that highlights the unseen work of sibling carers during the pandemic. “I entered this competition because I … Continued

National Siblings Day 2021: Jane

  My sister, Mary Kaye, was born with cerebral palsy (CP). She has had a number of other health complications throughout her life which can go a long with CP. I am 70 years old and Mary is 5 years younger than I. Two brothers fill out our family of 4 children.  In our family there … Continued

National Siblings Day 2021: Shamini

The day my sister was born, I had no idea this tiny baby would become the most important person in the world to me. Nearly four decades later, we are soul mates.  As children, we could be silly together but we were too different to enjoy the same things. That all changed when I took … Continued

Coronavirus: Sarah – “Covid is a very real threat”

  Living through the pandemic coronacoaster has been even more challenging for those of us who have been shielding to protect clinically vulnerable siblings. My brother Dan has Profound and Multiple Learning Disabilities due to a rare genetic condition called ATRX. Our younger brother Sam who had the same condition passed away suddenly from sepsis … Continued

Stories of shielding – August 2021

Over the summer of 2021, many Covid-19 restrictions were lifted across the UK and many people returned to pre-covid activities. For some siblings, this wasn’t possible. Some continue to shield or take daily life extremely cautiously, in order to protect their clinically vulnerable brother or sister. Our shielding survey in August 2021 revealed the extent … Continued