“About this talk: Having lost one brother to the world of autism and another to a terminal illness, Alicia Maples never knew a normal childhood. Expected to always put on a brave face, Alicia played the role of good girl on the outside. One the inside, however, she was dying. In this heart-wrenching talk, Alicia … Continued
On your radio Solihull – The South Asian Hour (2023) Adult sibling Monica talks about her experiences of being a carer Autism: In conversation with auticon (2022) Episode 9: Being a Sibling of an Autistic Person Tough topics in LD (2022) S2, Episode 2: Thriving in times of challenge with Charlotte Flynn Shapes of Grief, … Continued
I met my partner Isobel at work almost ten years ago. Neither of us were open about our sexualities at this point. We were good friends for around a year before getting together. I told Isobel about my sibling situation very early on as having a partner who accepted my family and all that it … Continued
By my mid 20s I had begun to realise that any boyfriend I brought home had to pass the fairly rigorous test of being able to love my family as well as me. It was a big ask, with two elder brothers who have learning disabilities due to Fragile X syndrome. My family seemed full … Continued
When my now husband and I first met, we were practically babies. We were both 20 years old (over 40 years ago) and caught up in the excitement of a special kind of intense love for one another, a powerful draw that was palpable. At the time, we both lived away from our homes, having … Continued
In this video, adult sibling Kausar shares her experiences of growing up in a large family, caring for her two brothers who have learning disabilities, alongside juggling work and raising her own family. She reflects on the loss of her father and how her own death will impact her brothers too. This video is available … Continued
Growing up as the middle sibling to two brothers with profound and multiple learning disabilities has made me the person I am today. Being tuned in to non-verbal brothers taught me to live mindfully well before anyone knew what that might mean. I am aware of the environment around me, changes in sound and light, … Continued
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. In this video, you can watch dancers Max Cookward … Continued
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. The work is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. Episode 3: The informal Carer Photo credit: Conversations with Carers, produced … Continued
I have an incredibly unique family as both my brother and sister have a degenerative disease of the nervous system. My Mum is in the last stages of Multiple Sclerosis (MS). So from the get-go I was in a world of disability, experiencing the good, the bad and the down right ugly!!! The advice I … Continued