What’s it like to grow up with a disabled brother or sister?
Hear more about the experiences of siblings in the video below, which was created in 2021 to celebrate Sibs 20th anniversary
Category: Two or more disabled brothers/sisters
Artwork by Pam Foley
Pam: “I believe that visual art, along with other art forms, can convey difficult to articulate feelings and emotions. What follows are images of my original artwork. Many of the artworks were intentionally created to visually convey some of the known issues faced by siblings of people with disabilities, for example: ‘the glass child’ idea, … Continued
Alicia Maples – Recognizing Glass Children (TED Talk)
“About this talk: Having lost one brother to the world of autism and another to a terminal illness, Alicia Maples never knew a normal childhood. Expected to always put on a brave face, Alicia played the role of good girl on the outside. One the inside, however, she was dying. In this heart-wrenching talk, Alicia … Continued
Tired of Spinning Plates
“Tired of Spinning Plates” is a project to understand and improve the mental health experiences of carers of adults with learning disabilities. Sibs is a partner of this project. Four sibling carers made short films about their experiences, which you can watch below. Click here to find out more about the Tired of Spinning Plates Project. … Continued
Fiona – “I was the responsible one, the one who could just get on with things”
I am the middle child. Three words to sum up my life as a sibling would be responsibility, patience and loneliness. My younger brother, Richard, has Downs’ Syndrome and now early onset dementia and my older brother, David, was diagnosed with schizophrenia in his late teens. I was the reliable one; the responsible one; the … Continued
Podcasts for adult siblings
The Special Needs Sibling Podcast (2023 – current) “A space where we talk about what life is REALLY like as a sibling to someone with a mental and/or physical disability.” Find it on your favourite platform (links here) On your radio Solihull – The South Asian Hour (2023) Adult sibling Monica talks about her experiences … Continued
Rachael – “Having a partner who accepted my family and all that it entails was a huge priority for me”
I met my partner Isobel at work almost ten years ago. Neither of us were open about our sexualities at this point. We were good friends for around a year before getting together. I told Isobel about my sibling situation very early on as having a partner who accepted my family and all that it … Continued
Sophie – “As a sibling, I felt guilty about my divorce”
By my mid 20s I had begun to realise that any boyfriend I brought home had to pass the fairly rigorous test of being able to love my family as well as me. It was a big ask, with two elder brothers who have learning disabilities due to Fragile X syndrome. My family seemed full … Continued
Pam – “Try to articulate what you need from your partner and be as clear and concise as possible”
When my now husband and I first met, we were practically babies. We were both 20 years old (over 40 years ago) and caught up in the excitement of a special kind of intense love for one another, a powerful draw that was palpable. At the time, we both lived away from our homes, having … Continued
Kausar – “Was I moulded into this role? It just comes from within myself”
In this video, adult sibling Kausar shares her experiences of growing up in a large family, caring for her two brothers who have learning disabilities, alongside juggling work and raising her own family. She reflects on the loss of her father and how her own death will impact her brothers too. This video is available … Continued