What’s it like to grow up with a disabled brother or sister?
Hear more about the experiences of siblings in the video below, which was created in 2021 to celebrate Sibs 20th anniversary
Category: Two or more disabled brothers/sisters
Alicia Maples – Recognizing Glass Children (TED Talk)
“About this talk: Having lost one brother to the world of autism and another to a terminal illness, Alicia Maples never knew a normal childhood. Expected to always put on a brave face, Alicia played the role of good girl on the outside. One the inside, however, she was dying. In this heart-wrenching talk, Alicia … Continued
Podcasts for adult siblings
On your radio Solihull – The South Asian Hour (2023) Adult sibling Monica talks about her experiences of being a carer Autism: In conversation with auticon (2022) Episode 9: Being a Sibling of an Autistic Person Tough topics in LD (2022) S2, Episode 2: Thriving in times of challenge with Charlotte Flynn Shapes of Grief, … Continued
Rachael – “Having a partner who accepted my family and all that it entails was a huge priority for me”
I met my partner Isobel at work almost ten years ago. Neither of us were open about our sexualities at this point. We were good friends for around a year before getting together. I told Isobel about my sibling situation very early on as having a partner who accepted my family and all that it … Continued
Sophie – “As a sibling, I felt guilty about my divorce”
By my mid 20s I had begun to realise that any boyfriend I brought home had to pass the fairly rigorous test of being able to love my family as well as me. It was a big ask, with two elder brothers who have learning disabilities due to Fragile X syndrome. My family seemed full … Continued
Pam – “Try to articulate what you need from your partner and be as clear and concise as possible”
When my now husband and I first met, we were practically babies. We were both 20 years old (over 40 years ago) and caught up in the excitement of a special kind of intense love for one another, a powerful draw that was palpable. At the time, we both lived away from our homes, having … Continued
Kausar – “Was I moulded into this role? It just comes from within myself”
In this video, adult sibling Kausar shares her experiences of growing up in a large family, caring for her two brothers who have learning disabilities, alongside juggling work and raising her own family. She reflects on the loss of her father and how her own death will impact her brothers too. This video is available … Continued
Sarah – “My brother taught me that it is possible to be cheerful even through times of pain”
Growing up as the middle sibling to two brothers with profound and multiple learning disabilities has made me the person I am today. Being tuned in to non-verbal brothers taught me to live mindfully well before anyone knew what that might mean. I am aware of the environment around me, changes in sound and light, … Continued
Dance ‘Joy’: Conversations with Carers produced by Rashmi Becker, Step Change Studios
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. In this video, you can watch dancers Max Cookward … Continued
Max – “Having two disabled brothers meant I grew up very quickly”
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. The work is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. Episode 3: The informal Carer Photo credit: Conversations with Carers, produced … Continued