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Ruby – “I feel every pain that passes through his body”

Ewen is my big brother and he has consumed my life from the moment I entered this complex world. I never recall questioning why Ewen didn’t talk, nor why we couldn’t attend the family meet-up or neighbour’s birthday party. My pride for my brother has always been in great abundance, not leaving any space for … Continued

Barbara – Poem: “Glass Child”

‘Glass child’ Apparently I am a glass child, We don’t have any problems and don’t make a fuss. We’re doing fine so don’t worry about us.   Yet in truth every day I felt guilty as my life rolled on. With my school, my friends, my hobbies…while for you there were none.   I sensed … Continued

Kimber – “Advocating as a sibling”

Siblings are typically the most consistent advocate for their disabled brother or sister throughout their lives. Many siblings do advocacy without even realising they’re doing it – whether that is young siblings advocating for their disabled brother/sister to be included in activities as children, or adult siblings pushing service providers to do better. Despite falling … Continued

Alicia Maples – Recognizing Glass Children (TED Talk)

“About this talk: Having lost one brother to the world of autism and another to a terminal illness, Alicia Maples never knew a normal childhood. Expected to always put on a brave face, Alicia played the role of good girl on the outside. One the inside, however, she was dying. In this heart-wrenching talk, Alicia … Continued