I’m the only family member for my brother aged 52 with Asperger’s and my mother, aged 88, who has dementia. So, if I can’t see anything about my relationship with my brother as a positive, how do I, as a great believer in the life-changing effects of focusing on positives, find a positive in having … Continued
My brother, Mark, has periventricular leukomalacia which is a lifelong disability caused by damage to his brain around the time of his birth. This has impacted him physically, cognitively and made him partially sighted. He has always lived in boarding schools or supported living due to the level of his needs, including challenging behaviour. Mark … Continued
Above: Joan and her sister, Irene Sibling Joan Corrigan shares her experiences in this powerful two-part blog ‘Accountability’. We know that many siblings will relate to Joan, when she says: “The powerlessness I feel is the worst, but not for me, for my sister. I feel this strong compulsion to protect her, given my skills … Continued
A well-meaning HR Manager once told me that she understood the difficulties I was having juggling issues with my brother’s care and a full-time job because she was a working parent and she too had the juggle childcare and work. I responded (perhaps slightly unfairly on reflection) by pointing out that as a parent she’d … Continued
My parents were foster carers. In 1976 when I was 4, a baby boy named Paul was placed with us. I cannot remember a time before Paul and I grew up together as brothers. Paul has severe learning disabilities and autism. He communicates through rote behavior & echolalia learnt through his lifetime. In the ‘moment’ … Continued
After the sudden death of a mother, the elderly father reluctantly turned to his son and asked if carers would possibly help with his daughter. A lady who lives with a learning disability, cerebral palsy, epilepsy, anxiety and mobility issues. His son had spent the past 30 years working within Adult Social Care, to understand … Continued
I live in Northern Ireland with my husband and we look after my mother-in-law who is in her 90s. My own parents are in their late 70s/early 80s and live in England. They are on a basic pension, and Mum has recently started having memory problems. My sister Emma has Down Syndrome and lives next … Continued
How have the last 6 months been for you as a sibling? The last 6 months have been immeasurably better and easier than the first 3-4 months of the pandemic. The company providing my brother, Jonathan, with care & support have been fantastic. They had a recruitment round over the summer, which means he’s now … Continued
I am a sibling of a man with learning disabilities. I’m also a single mum and an NHS worker. My brother moved in with my dad as an emergency placement in December due to abuse from his carers in his supported housing. It got to a point where my brother was so scared of the … Continued