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Who is this eBook for?

‘Self-care for siblings’ has been written by Sibs for adult siblings in the UK who have grown up with a brother or sister who has a lifelong disability.

Types of lifelong disabilities might include spina bifida, cerebral palsy, mild/moderate/severe or profound and multiple learning disabilities, Down Syndrome, Williams Syndrome, Apert Syndrome, Cornelia de Lange Syndrome, Autism Spectrum Disorder, Asperger Syndrome, Rett Syndrome, Mucopolysaccharide (MPS) diseases, Fabry disease and related diseases, a Syndrome Without A Name (SWAN), genetic disorders, Cri du Chat Syndrome, a life-limiting condition, Fragile X syndrome, Tuberous Sclerosis and any other lifelong physical or learning disability.

How can this eBook help me?

We hope that this eBook helps you to:

  • Recognise your sibling experiences
  • Take care of yourself
  • Have a choice in the role you play in your brother or sister’s life

Why is self-care important for me as a sibling?

It’s likely that you have experienced a lifetime of your needs coming second (or third, or fourth) to other people’s. For this reason, it can be particularly hard for siblings to meet their own needs (such as to get enough rest, to do something they enjoy, to say no when they need to). But self-care is not a self-indulgent luxury. It is an absolute necessity.

What’s included?

  • The most common topics and questions we hear from siblings
  • Ideas for self-care
  • Tips and experiences from other siblings

What’s not included?

This eBook is about you and your experiences. It is not about the care and support of your disabled brother or sister. This is why it doesn’t cover practical topics about their care, such as mental capacity, managing finances and getting a care needs assessment. If you need information on these topics, have a look at our guides for adult siblings.

Chapters include:

  • Being a sibling
  • Your feelings
  • Your mental health
  • Childhood experiences
  • Thinking about the future
  • Your relationship with your parent(s)
  • Your relationship with your disabled brother or sister(s)
  • Having your own children
  • Your own family life
  • Being a sibling carer
  • Siblings and work
  • Bereavement
  • How to find a counsellor

Send me a digital copy!

Enter your name and email address below and to receive the eBook via email. You will be added to our mailing list and can unsubscribe at any time. (Prefer a printed copy? Click here)

We are the only UK charity dedicated to the needs to siblings of disabled children and adults. If you can, please consider making a donation so we can continue to provide support to siblings.