What’s it like to grow up with a disabled brother or sister?
Hear more about the experiences of siblings in the video below, which was created in 2021 to celebrate Sibs 20th anniversary
Category: Bereaved sibling
Caroline – “As siblings, we are likely to be the people who support our disabled brothers and sisters at the end of their lives”
My brother Lionel, died in January 2020 of acute myeloid leukaemia. Lionel was 70 when he died; for 68 out of his 70 years he had been supported tirelessly by my mother, who died in 2017 aged 94. My sister Liz and I only had to take full responsibility for Lionel’s wellbeing for the brief … Continued
Artwork by Pam Foley
Pam: “I believe that visual art, along with other art forms, can convey difficult to articulate feelings and emotions. What follows are images of my original artwork. Many of the artworks were intentionally created to visually convey some of the known issues faced by siblings of people with disabilities, for example: ‘the glass child’ idea, … Continued
Podcasts for adult siblings
The Special Needs Sibling Podcast (2023 – current) “A space where we talk about what life is REALLY like as a sibling to someone with a mental and/or physical disability.” Listen on your favourite platform “The series as a whole is presented by someone who is an adult sib herself – Charlene, who is in … Continued
Maura – “I always looked forward to visiting my sister Alison”
Once I had a sister. Her name was Alison and she was twenty-one months younger than me, the middle child of our parents. We shared the same straight brown hair and green eyes, different from our younger brother with his blue eyes and blonde hair. Alison and I were born uneventfully at home. In the … Continued
Sarah – “My brother taught me that it is possible to be cheerful even through times of pain”
Growing up as the middle sibling to two brothers with profound and multiple learning disabilities has made me the person I am today. Being tuned in to non-verbal brothers taught me to live mindfully well before anyone knew what that might mean. I am aware of the environment around me, changes in sound and light, … Continued
Pam – “My own artwork, and that of others, helps me to uncover meaning and better understand my life as a sibling”
My twin severely autistic brothers were institutionalised at the age of 7. I was 6 and our younger brother was 5 at the time. This was in 1962. I do not remember our parents explaining to us what was happening, nor why our family was being broken up. I remember that my twin brothers were … Continued
Jack – “What started as frantic messages on my phone during a train ride to say goodbye became an ongoing conversation between the living and the lost”
When my younger brother and closest friend, Sam, passed away just shy of his twenty-seventh birthday from Duchenne Muscular Dystrophy, a muscle-wasting disorder that effects hundreds of thousands of boys worldwide, I began writing to him from the passenger seat of grief. What started as frantic messages on my phone during a train ride to … Continued
Alan – “A journey to make sense of feelings”
“The Search for Still Waters is about one sibling’s journey to make sense of his feelings around the life and death of his sister, who had severe cerebral palsy. Aoife couldn’t walk or talk and her condition was little understood in 1980’s rural Ireland. When she passed away in 2011, her brother Alan was left … Continued
National Siblings Day 2023: Sibling strengths
Join us in celebrating National Siblings Day on 10th April – a global awareness day recognising brothers and sisters! This year our theme is #SiblingStrengths and we spoke to three brilliant siblings who told us more about theirs. What are your #SiblingStrengths? What strengths do you admire in other siblings? Be part of the conversation … Continued