Skip to main content
  1. You are not alone! Share your feelings and experiences with other adult siblings online or at a face to face sibling group or workshop.
  2. Talk to your parents about your feelings and experiences. They may not know how you feel about your childhood or about how you feel about your brother or sister’s situation currently.
  3. Find out more about your brother or sister’s condition/s or disability. New research may be ¬†available and what you knew about it some time ago may have changed, or your brother or sister’s condition may have changed.
  4. Go for genetic counselling if you are concerned about any of the genetic implications of your brother or sister’s condition.
  5. Accept that it is normal to have mixed feelings about your brother or sister and the impact of their disability.
  6. Seek counselling support if you are finding it hard to cope with your feelings, or are experiencing anxiety or depression.
  7. Spend time doing things with your brother or sister that you both enjoy, rather than contact time being only caregiving.
  8. Discuss current care and support as well as plans for the future with your parent/s, siblings, and other close family, and make sure that the needs of all involved are considered when you make decisions about the role you want to have.
  9. List the positive benefits you have gained through growing up with and being with your brother or sister.
  10. It is OK to enjoy your own life. Make sure to do things on a regular basis that help you feel good about yourself.