Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. In this video, you can watch dancers Max Cookward … Continued
Being a sibling can be complicated and challenging. Many siblings grow up not knowing there are other people out there with similar experiences, but it can really help to know that you’re not alone. In this section, adult siblings share their stories of life with their disabled brother or sister.
Conversations with Carers explores the lived experience of paid and unpaid carers through a series of podcasts and articles, which have also inspired 5 short dance films performed by disabled and non-disabled artists, some of who are also carers. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported … Continued
Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. The work is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England. Episode 3: The informal Carer Photo credit: Conversations with Carers, produced … Continued
A well-meaning HR Manager once told me that she understood the difficulties I was having juggling issues with my brother’s care and a full-time job because she was a working parent and she too had the juggle childcare and work. I responded (perhaps slightly unfairly on reflection) by pointing out that as a parent she’d … Continued
Summer Brother by Jaap Robben: A sweet tale of sibling love, told without sentimentality Teenager Brian comes from a dysfunctional family; his parents are divorced and he lives with his conniving father in a trailer home, located in a remote Dutch landscape. He is the only child on the site. When Brian’s physically and mentally … Continued
This pic was taken in autumn 2020 when my sister Carol had just had a hip replacement at Hinchingbrooke hospital in Cambridgeshire. It’s not the most glamorous pic but then, it’s not always glamorous being a sibling is it?! Carol has Apert Syndrome which for her means she has some physical and some mild learning … Continued
Living through the pandemic coronacoaster has been even more challenging for those of us who have been shielding to protect clinically vulnerable siblings. My brother Dan has Profound and Multiple Learning Disabilities due to a rare genetic condition called ATRX. Our younger brother Sam who had the same condition passed away suddenly from sepsis … Continued
Where am I? Almost 2 years on – that is a good question and it feels like it is very difficult to answer. I really want to write this update and tell a story of everything being great – that I am back to doing the things I love. The reality is that I feel … Continued
My debut novel, Patience, was published in hardback in August. At its heart is a severely disabled woman, Patience, who understands everything, even though everyone around her thinks she can’t. It took me a long time to realise – well into the editing process for the novel, long after I’d been given a book deal … Continued
Over the summer of 2021, many Covid-19 restrictions were lifted across the UK and many people returned to pre-covid activities. For some siblings, this wasn’t possible. Some continue to shield or take daily life extremely cautiously, in order to protect their clinically vulnerable brother or sister. Our shielding survey in August 2021 revealed the extent … Continued
Would you like to help other siblings by sharing your own story? Please get in touch.