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Rashmi – “Having the permission to talk honestly is critical for carers”

Conversations with Carers explores the lived experience of paid and unpaid carers through a series of podcasts and articles, which have also inspired 5 short dance films performed by disabled and non-disabled artists, some of who are also carers. Conversations with Carers is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported … Continued

Max – “Having two disabled brothers meant I grew up very quickly”

Conversations with Carers is a series of podcasts, articles and innovative dance films, which examines the realities of paid and unpaid care. The work is created by Rashmi Becker, MBE, Founder of Step Change Studios, and supported using public funding by Arts Council England.   Episode 3: The informal Carer Photo credit: Conversations with Carers, produced … Continued

Adult sibling book reviews

Summer Brother by Jaap Robben: A sweet tale of sibling love, told without sentimentality Teenager Brian comes from a dysfunctional family; his parents are divorced and he lives with his conniving father in a trailer home, located in a remote Dutch landscape. He is the only child on the site. When Brian’s physically and mentally … Continued

Coronavirus: Sarah – “Covid is a very real threat”

  Living through the pandemic coronacoaster has been even more challenging for those of us who have been shielding to protect clinically vulnerable siblings. My brother Dan has Profound and Multiple Learning Disabilities due to a rare genetic condition called ATRX. Our younger brother Sam who had the same condition passed away suddenly from sepsis … Continued

Stories of shielding – August 2021

Over the summer of 2021, many Covid-19 restrictions were lifted across the UK and many people returned to pre-covid activities. For some siblings, this wasn’t possible. Some continue to shield or take daily life extremely cautiously, in order to protect their clinically vulnerable brother or sister. Our shielding survey in August 2021 revealed the extent … Continued

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