Covid-19: Have your say
Many adult siblings are involved in their disabled brother or sister’s care, and it is important that sibling voices are heard. You can do this by taking part in these surveys and by sharing your experiences with us.
Coronavirus – sibling experiences
You can read about the experiences of other adult siblings during the pandemic, here.
If you have a coronavirus story, we would like to share this with our community to raise awareness of siblings’ needs and to help other siblings feel less alone in what they are going through. You can do this anonymously if you prefer. Email email@example.com with roughly 500 words.
UK Disability Unit
“The Disability Unit at the Cabinet Office is developing a National Strategy for Disabled People. Publication is planned for Spring 2021.To help the government with understanding the barriers that disabled people face and what it may need to focus upon to improve the lives of disabled people, we need to hear about your views and know more about your experiences. This survey will ask about your life experiences either as a disabled person, a carer or parent or as someone who has an interest in disability issues. Many people have had big changes in their lives as a result of the COVID-19 pandemic and there will be an opportunity at the end of the survey to state if your life has changed notably due to COVID-19, and in what ways. However, please answer other questions thinking about yourself, your own experiences and your current situation.”
Click here to complete the survey (open until April 23rd).
Experiences of people with learning disabilities
UK Research and Innovation have funded a new research project that is exploring the experiences of people with a learning disability during the coronavirus pandemic. The research is being led by Professor Richard Hastings (University of Warwick) and Professor Chris Hatton (Manchester Metropolitan University). The researchers want to talk to 1000 adults with a learning disability across the UK three times over this year. This can be done over the phone or on Zoom/FaceTime. If your brother/sister is interested in taking part they can find out more and register their interest here. There is also a survey for family carers of people with learning disabilities who could not take part in an interview with a researcher themselves. Click here to find out more and take part.
In Control and Disability Rights UK have set up a register to record people’s experiences of getting health, social care and treatment for Covid-19 during the time of the pandemic. They want to hear the experiences of disabled people and people with long-term health conditions, their carers and family members, both good and bad, of getting support. Report your experience of getting care or treatment during the Coronavirus (COVID-19) pandemic here.
The UK Parliament’s Joint Committee on Human Rights (JCHR) is currently holding an inquiry into the UK Government’s response to Covid-19. This inquiry is looking at how people’s human rights may have been affected. This survey is for people who access (or are trying to access) care and support, their family members and people who care about them. You can take part in the survey here.
This page was last updated: 17th February 2021
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