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Coronavirus: Sarah – “Covid is a very real threat”

  Living through the pandemic coronacoaster has been even more challenging for those of us who have been shielding to protect clinically vulnerable siblings. My brother Dan has Profound and Multiple Learning Disabilities due to a rare genetic condition called ATRX. Our younger brother Sam who had the same condition passed away suddenly from sepsis … Continued

Stories of shielding – August 2021

Over the summer of 2021, many Covid-19 restrictions were lifted across the UK and many people returned to pre-covid activities. For some siblings, this wasn’t possible. Some continue to shield or take daily life extremely cautiously, in order to protect their clinically vulnerable brother or sister. Our shielding survey in August 2021 revealed the extent … Continued